tag:blogger.com,1999:blog-587987529716680225.post1965286557587382785..comments2016-07-14T00:23:05.833-07:00Comments on Conquering Down Syndrome: March Forth!Unknownnoreply@blogger.comBlogger10125tag:blogger.com,1999:blog-587987529716680225.post-52320063758388641242015-07-04T07:28:32.053-07:002015-07-04T07:28:32.053-07:00Hi Dorothy,
It's hard for me to definitively s...Hi Dorothy,<br />It's hard for me to definitively state whether or not glyconutrients helped Jacinta and in what way. <br />The main reason we used glyconutrients from birth was that we had read that people using glyconutrients had improved their heart defects. Jacinta did have some holes in the heart close spontaneously, very small (about 1mm or so) but the larger ones (5-8mm) did not close. They were just too big. <br />The other reasons for using glyconutrients have been for improved immunity and for facial development. Jacinta was fairly robust for that first while and she often didn't look like she had Trisomy 21 at all. <br />Now I stopped using supplements once I started breastfeeding again, mostly because it was much harder for me to supplement breastmilk and we hadn't made it far onto solids by the time she had leukaemia, at which time she was almost exclusively on breastmilk. <br />SInce the leukaemia I haven't worked out a good way to begin supplementing again, nor have I properly worked out what supplements I want to give her. Glyconutrients are at the top of the list, since they're so easy, natural and not found in any other supplement. <br />We still continue with the NAET, which is as likely to have been responsible for the things mentioned above as glyconutrients. <br />I think they really are a case by case thing. Since T21 expresses itself differently for each person, I think some will find that certain supps work whereas others will find that others work. <br /> (I saw the duplicate copies of your question below and have deleted them)teamjacintahttps://www.blogger.com/profile/13985826146130559805noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-21923467029166984432015-06-28T17:02:18.407-07:002015-06-28T17:02:18.407-07:00This comment has been removed by a blog administrator.Dorothy Ackleshttps://www.blogger.com/profile/08657570243143332172noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-72385455106066020162015-06-28T17:02:17.273-07:002015-06-28T17:02:17.273-07:00This comment has been removed by a blog administrator.Dorothy Ackleshttps://www.blogger.com/profile/08657570243143332172noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-68579082118028927202015-06-28T17:01:41.049-07:002015-06-28T17:01:41.049-07:00I just found your blog after first reading one of ...I just found your blog after first reading one of yours from a couple years back. In the older blog you had mentioned you tried glyconutrients. Did you find that they helped Jacinta at all?Dorothy Ackleshttps://www.blogger.com/profile/08657570243143332172noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-86121833104064195692015-03-21T04:12:27.099-07:002015-03-21T04:12:27.099-07:00I totally agree Laura!I totally agree Laura!teamjacintahttps://www.blogger.com/profile/13985826146130559805noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-88150665648080809122015-03-20T20:50:04.995-07:002015-03-20T20:50:04.995-07:00I have always hated the odd socks campaign. not on...I have always hated the odd socks campaign. not only does it signify the inability to dress properly but it also singles people out as being odd or different. <br /><br />Laura<br />Http://downsyndromeupupupandaway.blogspot.ca/Laurahttps://www.blogger.com/profile/07920373673755656396noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-85831101496044995412015-03-17T14:44:47.692-07:002015-03-17T14:44:47.692-07:00Yes, I rarely mention T21 either, and when people ...Yes, I rarely mention T21 either, and when people look surprised that she's 2yo at her size etc I just explain the heart defect and the leukaemia. I agree also re the perception of her. The parents I've spoken to whose children I was most impressed with have all had the same opinion. Just treat them the same as your other children and expect the same from them. <br />teamjacintahttps://www.blogger.com/profile/13985826146130559805noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-17247841973673919852015-03-17T14:42:33.142-07:002015-03-17T14:42:33.142-07:00So true Carrie. :-)So true Carrie. :-)teamjacintahttps://www.blogger.com/profile/13985826146130559805noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-64651086984058068182015-03-17T13:07:14.331-07:002015-03-17T13:07:14.331-07:00I couldn't agree more. We are achieving so man...I couldn't agree more. We are achieving so many amazing results with all of these alternative therapies…people can scarcely believe it. But I think the most important piece has been our perception of our daughter. She is not different from our other daughter because of her diagnosis, she is different because she is a different person. Plain and simple. We stopped using the term Down syndrome almost immediately after she was born. Occasionally we use T21, when referencing medical issues, but even that isn't so prevalent any more. We just see HER, and whatever her needs are, they are - same goes for her sister. In my opinion, all children have special needs, because all children are special. And I don't make any apologies for having equal expectations for both of my girls' futures. So It Is Written...https://www.blogger.com/profile/13245340386933766781noreply@blogger.comtag:blogger.com,1999:blog-587987529716680225.post-55753567336671451992015-03-15T05:52:41.557-07:002015-03-15T05:52:41.557-07:00Every child deserves love, drop the labels and jus...Every child deserves love, drop the labels and just love themAnonymoushttps://www.blogger.com/profile/00222852769719380549noreply@blogger.com